Negotiating uncertainties: care-seeking in an algorithmic society

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Abstract

This article examines how different layers of health-related uncertainties emerge and intersect in an algorithmic society. We aim to understand how people's self-care practices co-evolve with digitalised health systems. Sweden stands out among Western countries due to the population's high digital consumption of medical and health products. We conceptualise health-related uncertainties as inherent in care-seeking. The uncertainties are embedded in an algorithmic society and hinge on what we term algorithmised medicine. Methods used are open-ended questionnaires and semistructured interviews with Swedish residents. We identify: First, people are aware of algorithm-embedded digital infrastructure and its impact on information access in everyday life. Second, people oscillate on a trust-distrust nexus in different contexts. And third, lived experiences of the body compete with medical advice and online information. We conclude that while formal health systems strive to be robust, access to medicines remains an uncertain practice at the interplay of medicine, algorithms and bodily experiences of sickness. This study contributes to the field of medical humanities by showing that the digital arena is a porous and emergent entity, with inseparable links to people's lived experiences.

Original languageEnglish
Pages (from-to)415-422
Number of pages8
JournalMedical Humanities
Volume51
Issue number3
DOIs
Publication statusPublished - 1 Sept 2025
MoE publication typeA1 Journal article-refereed

Funding

The authors thank all research participants. The authors also thank Henrik Loodin, Markus Idvall and Rachel Irwin for their comments on previous versions of this manuscript. We are also grateful to Ebba and Sigfrid Svensson Foundation for Folklore Studies for making this article open access. This project was funded by the Marcus and Amalia Wallenberg Foundation (grant number: 2020.0004) and by the Erik Philip-Sörensen Foundation (grant number: H2030-008). This project was funded by the Marcus and Amalia Wallenberg Foundation (grant number: 2020.0004) and by the Erik Philip-Sörensen Foundation (grant number: H2030-008).

Keywords

  • cultural studies
  • internet
  • Medical humanities
  • Qualitative Research
  • User

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