Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health

Hanife Rexhepi, Jonas Moll, Isto Huvila, Rose-Mharie Åhlfeldt

    Research output: Chapter in Book/Conference proceedingConference contributionScientificpeer-review

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    Abstract

    Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient x0301 preferences for receiving bad news, including through PAEHRs. Little is also known about the characteristics of the patients who prefer to receive bad news through the PAEHR in terms of e.g. medical diagnosis, age and educational level. This study, based on a national patient survey in Sweden (N=2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women (p=0.001), and the same goes for those who are not working/have worked in healthcare (p=0.007). An effect of disease groups was also found, showing that diabetes patients in particular, want to receive bad news through the PAEHR.
    Original languageEnglish
    Title of host publicationProceedings of the Eighteenth International Symposium for Health Information Management Research Kalmar, Sweden (Online) 17 - 18 October 2020
    EditorsPeter Bath, Päivi Jokela, Laura Sbaffi
    Place of PublicationKalmar and Sheffield
    PublisherLinnaeus University, University of Sheffield
    Pages169-178
    Number of pages10
    ISBN (Print)978-91-89081-09-3
    Publication statusPublished - 2020
    MoE publication typeA4 Article in a conference publication
    EventInternational Symposium on Health Information Management Research ISHIMR - International Symposium for Health Information Management Research
    Duration: 24 Jun 201526 Jun 2015

    Conference

    ConferenceInternational Symposium on Health Information Management Research ISHIMR
    Period24/06/1526/06/15

    Keywords

    • abnormal test results
    • bad news
    • patient accessible electronic health record
    • patient
    • physician

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