Dealing with ethical and existential issues at end of life through co-creation

A1 Journal article (refereed)

Internal Authors/Editors

Publication Details

List of Authors: Jessica Hemberg, Elisabeth Bergdahl
Publisher: Sage
Publication year: 2019
Journal: Nursing Ethics
Start page: 1
End page: 19
eISSN: 1477-0989


Background: In research on co-creation in
nursing, a caring manner can be used to create opportunities for the patient to
reach vital goals and thereby increase the patient’s quality of life in
palliative home care. This can be described as an ethical cornerstone and the
goal of palliative care. Nurses must be extra sensitive to patients’ and their
relatives’ needs with regards to ethical and existential issues and situations
in home care encounters, especially at the end of life.

Aim: The aim of this study was to explore nurses’ experiences of dealing with
ethical and existential issues through co-creation at end of life in palliative
home care.

Research design,
participants, and research context:
The material consisted of
texts from interviews with twelve nurses in a home care context. A
hermeneutical approach was used and the method was inspired by a thematic

Ethical considerations: Informed consent was sought
from the participants regarding study participation and the storage and
handling of data for research purposes. Ethical permission to conduct the study
was given by the organizations where the participants worked.

Findings: A main theme and four
sub-themes emerged. The main
theme was “Deep co-creative relationships are needed to manage ethical and
existential issues at end of life”. A model was created to display the findings
and relations between ethical issues and situations and the need for a deep
trustful caring relationship to solve problems in palliative home care.

Discussion: Together, the themes can be considered
as a tool for learning and dealing with ethical and existential issues at the
end of life in home care. The themes can also be seen as a part of nurses’
ethical competence within this

Conclusion: The quality of life at the end of life can be improved
through co-creation, despite difficult ethical and existential issues. Future
research should focus on co-creation from the patients’ perspective.


Co-creation, end-of-life care, ethical issues, exi


Last updated on 2020-06-04 at 05:23